Fibromyalgia/ADD:Pop Culture The Beatles

In 1964, I was 9 years old, and the Beatles exploded into my conciousness like an atomic bomb!

We were poor, battered and bruised, but my oldest sister had a job and had bought my Mom a TV. So we gathered round in that infamous night of Feb. 1964 and watched the Ed Sullivan Show along with 73 million other people❤️ The Beatles performed and changed me forever…and I was just 9 years old. Just a little kid, already hopeless and afraid, watched 4 young guys sing a happy, upbeat song….and I was hooked FOREVER. I did not have the raging hormones of a teenage girl, I didn’t fall in love with a cute image in tv. I discovered, for the first time, that an upbeat, happy song could make me feel different, joyful and hopeful. 

During that year I watched every interview with the Fab Four, adored every song, danced and sang like a fool. They were irreverent, cheeky and funny…and I totally could relate to that, because that was me! They were celebrated for it, I was punished for it. Nonetheless, it gave me the sense that I would be ok sometime in the distant future. Goodness knows I needed something to make hopeful I could escape my circumstances. And I did escape eventually.

And I still love The Beatles❤️ all their music as well as John Lennons’ music. I never got into any of Pauls’ music. As individual artists, only John Lennon reached me with is music. So it remains that the Beatles, as a whole entity, got my fanship, but once they split, I didn’t follow their careers other than Johns’.

What a crazy, wild time they had! So much fun, for them and for the world. They made people happy…can’t ask for much more than that in life.

Fibromyalgia: Sleep Apnea

My doc sent me to a sleep study, which diagnosed me with moderate sleep apnea. Moderate means I stop breathing 271 times in a four hour sleep period. The longest I stop breathing is 51 seconds, on average it’s 42 seconds. Let me tell you, I cannot hold my breath for 51 seconds while I am awake😄

Anyway, I am very busy while sleeping, my body working hard to keep me alive. So, is it any wonder I am so f#*+ing exhausted all the time. Hubby came with me in case I missed something important on the use of the new machine and mask I have to wear while sleeping. He said my body is busier while I sleep than when I’m awake. I have to agree, during waking house I barely move off the couch. My exercise is shuffling from the couch to the coffee machine to the bathroom etc.

Anyway, I am on a 4 week trial with a CPAP machine. I wear a nose mask that is connected to a machine that blows oxygen into me while I sleep. Quiet machine, soft nose mask that is keep on my face by straps wrapping around my head. So far, night 3 was a bit more successful than night 1 and 2. I still sleep the same amount of time, 4-5 hours, I’m still pretty damn tired during the day, so nothing changed for me yet. Guess it’s quiet for the hubby, as he doesn’t have to listen to any snoring or gasping in my sleep. I do not have high hopes for this therapy. I’m not really a pessimist but consider myself a realist. Well I guess we will see at the end of 30 days. 

Untreated sleep apnea has been shown to co-exist with high blood pressure (I have low blood pressure), heart disease (so far, no sign of that for me), heart attack, irregular heart beat & stroke (fingers crossed, none of that for me) and type 2 diabetes (rampant in my family, yet I still test negative for this also). As a matter of fact, all my lab works come back and always show a very healthy woman! 

Go figure🙄

Fibromyalgia/ADD: Moments

I’m still plugging away at the guitar, know 3 songs now. It’s hard but pleasurable. Doesn’t take away any of the pain, but does distract me from the pain for those moments with guitar in hand.

I’m still singing the odd karaoke as well. This also is just moments of distraction, when the pain isn’t the main focus of my life.

I guess that’s all we can do is carve out moments of time in this pain-filled life that bring tiny moments of pleasure.

On the Doctor front; got sent to sleep clinic and prescribed CPAP machine…..we’ll see how much sleep I get wearing that! Guess it can’t be much less than I get now.

Also, I’m waiting for a call from a sinus specialist because this gagging, post nasal drip is ridiculous. Definitely not allergies is all we know at this point. Hence, the specialist.

Oh brother, here we go again…another round of doctors. Just never ends til we give up, right?

Fibro/ADD: Learn Something New!

I was so bored with myself I decided to learn how to play the guitar😅 So, I spent $105.00 on Amazon and bought one. I got an Indiana Runt, 3/4 sized guitar (cause I’m small with freakishly short fingers).

It has a decent sound (when played by someone that knows how, one of my younger brothers), is lightweight and easy to hold against my short-waisted self. My fingers fit comfortably around the neck. I didn’t want to spend a lot of money on yet another trip down the hobby path🙄

Easy to tune…there’s an app for that called Guitartuna!

The easy way to learn cords when you can’t read music is to use tablature, diagrams of guitar chords that show you which fingers go on which strings to creat a chord. Cool beans.

There are hundreds upon hundreds of free guitar lessons on YouTube. E-Z songs with 3 E-Z chords.

It’s been 5-6 weeks now, I can use about 7-8 chords comfortably and move from one to the next in a relatively comfortable pattern. 

I still haven’t figured out a way to sing the words to the speed I’m playing.

Practice, practice, practice….and practice some more! 

I doubt I’ll ever play in front of anyone but at least I’m doing something that captures my interest❤️

Fibro,ADHD: Bore Myself to Death

Time passes slowly when alone with only myself to amuse me. So, I ordered a cheap guitar on Amazon 17!days ago and have been learning how to play Stand By Me with 4 simple chords and an e-z R & B strumming pattern. 

The tips of my left hand fingers have finally hardened enough to practice longer than 5 minutes😬

I can transition slowly from one chord to the next without consulting the tablature🙄

I wish I could play like Stevie Ray Vaugh…Eric Clapton…any blues player actually😅

I still want to put the cart before the horse even though I am long past the age of unrealistic expectations😊

Oh well, I’ll keep plugging along, because “practice makes perfect” and I’ve got nothing better to do😔

Besides, it’s not like I’ll ever play and sing in front of any real, live human beings😱

Fibro: Grief

9 years ago both my parents died. Dad first, then Mom. At Mom’s funeral I went over the edge.

I cried uncontrollably, was shocked by the pain I felt for losing parents I was so alienated from. I didn’t know what to do.

Instead of joining my siblings and cousins in the traditional “after-funeral party”, I left. Maybe I should have stayed….for support?

That was the beginning of the end for me. I went into a depression so deep I could no longer function (and remained ignorant of the cause). I went for medication, diagnosis and counselling. Not once did I mention how I felt about the death of my parents! Why? Because denial was strong enough to bury that truth, and it was buried deep!

So, here I am, 9 years later, just realizing on the 9th anniversary of my parents death what my problem has been. Talk about being out of touch! Sheesh! The trigger to my realization of what is going on was another posting by one of my siblings about how she missed Mom every day….this is from the person with the absolute worst relationship with my crazy-assed mother….and it pissed me off to no end, year after year of her saying how awful it was to miss her mother….they didn’t get along AT ALL! So hateful to each other, mean and nasty together. So I have bounced from denial, anger and depression ALL THIS TIME!

What the hell is wrong with me….to be SO OUT OF TOUCH with my own emotions? 

Fibro: My Feet Were The First To Go

Not only do I miss walking for miles and miles, I really miss cute shoes🙄

Fibro: Just One Good Reason Why?

Woke up, got out of bed and my feet protested loudly

No, I did not do much yesterday, mostly rested because it was a tiresome, high humidity rainy day. And, no, I did not take a middle of the night hike anywhere. 

So WHY are my feet so sore, tired, hot and burning after a nights rest? Any logical reason? 

Fibro: Positivity + ADD/ADHD

I have been in such a downward spiral for many months now. I blame it on Fibro but, I suspect it is all tied together with the ADD. Which is a bummer😔

This pic of brains on disorders is interesting, however, I often wonder, so what? So what if that disorder makes my brain different? How does that help me? 

Answer is, you can stop feeling guilty, blaming yourself for behaviour which is out of your control! 

Sure, there are many, many coping mechanisms available to accommodate all of our differences, but, bottom line is, you cannot cure it. You cannot rid yourself of this disability, you can only learn how to cope so you don’t hurt yourself or others.

Same goes for Fibro. Trying drugs to rid your body of the pain is frustrating, to say the least, and depressing. You become discouraged, leading to feelings of hopelessness and helplessness. 

But you’re not really helpless. You can find ways to lessen the pain, cope with lack of sleep and accept your new you.

Not a “new and improved” you, just a different you. More like the gracefully aging woman/man, rather than the “desperately trying to hide their age” woman/man. Those trying to hide who they really are become the fuel for all the cruel and senseless jokes out there.

Be graceful;  accept who you are, what you have become and where you are heading. Learn to love what you have instead of moaning and groaning about what you don’t have. It’s the only way.

Fibro: reblog from the Mighty

Fibromyalgia 24 Things No One Talks About

All True!!!!

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